INPHOG-RB-25-02

A Prospective Registry of Newly Diagnosed Patients with Retinoblastoma in India

PI : Dr. Amita Mahajan

Institution : Apollo Hospital, Delhi

About the Study

To Establish a dedicated registry for newly diagnosed RB in India with complete baseline data collection using a common form and prospectively document clinical features/ epidemiology of newly diagnosed RB in India.

Aim of the Study

To establish a prospective, multicentric national registry of newly diagnosed pediatric retinoblastoma in India to systematically collect standardized baseline data and prospectively document clinical characteristics, epidemiology, and initial treatment patterns.

Eligibility Criteria

Inclusion Criteria

All patients with Retinoblastoma presenting to the participating centre from the onset of the registry study.
Age < 18 years.
Patients with RB that may have received some treatment at another centre and now presenting to the participating centre can be enrolled into the study after ensuring that they are not already enrolled by the previous center a separate CRF.
An informed consent should be taken from all parents/family for enrolling the subject in the study.

Exclusion Criteria

Patients whose caregivers refused consent
Diagnosis is uncertain