INPHOG-EPI-24-04

Establishing the inphog network of hospital-based childhood cancer registries (hbccrs) in India.

PI : Dr. Venkatraman Radhakrishnan

Institution : Cancer Institute Adyar, Chennai

About the Study

This initiative focuses on creating a nationwide network of hospital-based childhood cancer registries (HBCCRs) across INPHOG centres in India. The registry will systematically capture high-quality data on childhood cancer patients, including diagnosis, treatment, and outcomes. The goal is to generate reliable, standardized, and comprehensive data to better understand childhood cancer patterns and improve care delivery and survival outcomes.

Aim of the Study

To establish a dedicated national network of HBCCRs across INPHOG institutions.
To ensure standardized, high-quality, and complete data collection on childhood cancers.
To generate robust data for outcome analysis, research, and policy-making.
To support national and global efforts (like WHO-GICC) in improving childhood cancer survival.

Eligibility Criteria

Inclusion Criteria

Children and adolescents ≤19 years diagnosed with cancer or non-malignant brain tumors.
Patients registered and treated at participating INPHOG centres.
Cases where patient/parent data can be included in the registry (as per institutional norms).

Exclusion Criteria

Patients not treated at the INPHOG centre (e.g., second opinion only cases).